Adenoid Cystic Carcinoma Research Foundation
Adenoid Cystic Carcinoma (ACC) is diagnosed in about 1,200 new cases each year and afflicts about 10,000 patients in the United States. ACC’s progression is typically gradual and sometimes relentless. The disease has a tendency to grow along nerves and metastasize to the lungs. The Adenoid Cystic Carcinoma Research Foundation (ACCRF) supports research into adenoid cystic carcinoma that will accelerate the development of improved therapies and a cure for the disease. ACCRF’s Research Agenda represents the best efforts of the best minds at the best cancer institutions in the world to find a cure for ACC.
Children's Tumor Foundation
Children’s Tumor Foundation (CTF) is the leading nonprofit funding source of Neurofibromatosis (NF) research in the world. The Foundation funds research in all three types of NF: NF1, NF2, and Schwannomatosis. The Foundation’s initiatives encompass target discovery and preclinical and clinical studies. The Foundation considers proposals aimed at understanding cellular, genetic, and molecular mechanisms underlying the pathogenesis of NF, identifying novel therapeutic targets, testing candidate therapeutics, and analysis of the natural history of NF. For more information, visit ctf.org/research.
Cystinosis Research Foundation
The Cystinosis Research Foundation’s mission is two-fold; to find better treatments and a cure for cystinosis. Funding quality research studies remains a priority and is an ongoing process. We strive to support bench and clinical research that is focused on developing improved treatments and a cure for csystinosis. Visit cystinosisresearch.org to learn more.
The Epilepsy Foundation is a community-based, family-led organization dedicated to improving the lives of all people impacted by seizures. One third of people with epilepsy – approximately one million people in the United States — live with uncontrolled seizures, and significantly more live with less than optimal seizure control and/or unfortunate side effects from their treatment. The Epilepsy Foundation believes this is unacceptable and works to ensure the field of epilepsy research remains vibrant, innovative and life-changing. For more information about the Foundation’s research priorities, visit http://www.epilepsy.com/get-help/new-therapies-and-research.
JDRF is the leading global organization funding type 1 diabetes (T1D) research. Millions of people around the world live with T1D, a life-threatening autoimmune disease that strikes both children and adults. There is no way to prevent it, and at present, no cure. JDRF works every day to change this by amassing grassroots support, deep scientific knowledge and strong industry and academic partnerships to fund research. JDRF’s focus and funding spans early exploratory research, preclinical proof-of-principle, proof-of-concept clinical trials through to ensuring regulatory approval and reimbursement across all stages of T1D. Visit www.jdrf.org/research to learn more about JDRF’s funding priorities.
Parent Project Muscular Dystrophy
Parent Project Muscular Dystrophy’s (PPMD) mission is to end Duchenne by accelerating research, raising their voices in Washington, demanding optimal care for all young men, and educating the global community. PPMD’s family-centered approach is at the heart of everything they do. Research is crucial to PPMD’s goal of ending Duchenne. PPMD is the only muscular dystrophy research organization to invest in a broad research portfolio and explore short-, mid-, and long-term treatments and therapies. Visit parentprojectmd.org to learn more.
The Breast Cancer Research Foundation
The Breast Cancer Research Foundation (BCRF) is a nonprofit organization committed to achieving prevention and a cure for breast cancer. BCRF provides critical funding for cancer research worldwide to fuel advances in tumor biology, genetics, prevention, treatment, metastasis, and survivorship. Breast cancer is a complex disease with no simple solution, which is why BCRF’s funded researchers are tackling it from every angle. Each of the BCRF’s areas of focus are critical to knowing how to fight cancer from the start, slow its progress, and one day stop it from occurring altogether. For more information, visit bcrfcure.org/impact.
Cure Alzheimer's Fund
Cure Alzheimer’s Fund is a non-profit organization dedicated to funding research with the highest probability of preventing, slowing or reversing Alzheimer’s disease. When Cure Alzheimer’s Fund was created in late 2004, its mission was to end the disease by:
1. Identifying all risk genes;
2. Using those genes to reveal underlying disease mechanisms; and
3. Aggressively pursuing potential therapies based on the knowledge gained from Alzheimer’s genes.
To learn more about Cure Alzheimer’s Fund research road map please visit here.
EB Research Partnership is the largest nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening genetic skin disorders that affect children from birth. An individual with EB lacks a critical protein that binds the layers of skin together. Without this protein, the skin tears apart, blisters and sheers off, leading to severe pain, disfigurement, and wounds that never heal. EB affects at least one in every 50,000 births (25- 30,000 people in the US ) and is not specific to any ethnicity or gender. EB Research Partnership is interested in funding research projects designed to result in the creation of treatments and/or therapies for the benefit of EB patients with the aim of commercialization within the next 3-5 years. To learn more, visit ebresearch.org/research.
As the leading crowdsourced funding platform for medical research, Healthfundit empowers anyone to directly support promising medical research across all areas. Healthfundit’s software is able to predict the likelihood of crowdfunding success and make it easy for scientists to tell compelling stories that engage a diverse audience who desire to help accelerate specific avenues of research. Our initial areas of focus include, but are not limited to, basic, proof-of-concept, preclinical, drug discovery, rare, neuroscience, oncology, and infectious disease research. Additional details and areas are available on our site and are constantly being updated. For more information, visit healthfundit.com.
The National Alopecia Areata Foundation
The National Alopecia Areata Foundation (NAAF) serves the community of people affected by an autoimmune skin disease called alopecia areata that results in hair loss and emotional pain. NAAF supports research to find a cure or acceptable treatment for alopecia areata, supports those with the disease, and educates the public about alopecia areata. NAAF accepts proposals that pursue innovative research towards the discovery and/or development of a treatment or cure for alopecia areata. Proposals can be hypothesis generating or hypothesis testing with sufficient preliminary data, and should propose new approaches to important questions in alopecia areata. Visit www.naaf.org/advance-research for a description of NAAF’s funding priorities.